ocd

Featured Advocate: Cindy from Recovery- the Journey that follows 3/26

featured page

delembCindy: At an early age, I thought I could “save the world” and everyone in it. Elders tried to discourage me throughout my life saying “You can’t help everyone”. When I began my recovery, I was fortunate enough to have my husband by my side, but no other friends or family to be there for me in my time of need. That is when I decided to create my home online group My Journey, then later on my page Recovery- the Journey that follows. We all long for understanding, compassion, and respect. And sometimes this is easiest to find among others who share our situation or outlook. My calling was thrown into full mode in no time. I enjoy helping people, hearing their stories, helping them get down to the root of their addiction, giving them the resources they need, and listening to them vent or ask for support.

Recovery- the Journey that follows:  Addiction, recovery, mental and chronic illness, self mutilation, etc. We provide inspiration and the resources needed to cope/overcome your struggle ❤️

Group: My Journey is a place where men & women can comeand support each other through life’s difficulties. It is where we strive to build an online family. We all long for understanding, compassion, and respect. And sometimes it’s easiest to find this among others who share our situation or outlook. That’s where our support group comes in. There is nothing like sharing stories and experiences with others on the same path. *****We discuss addiction, recovery, depression, anxiety, OCD, bipolar, chronic illnesses, and self harm.

Our group is a tight-knit family, where we can be free and comfortable with one another, without feeling judged or criticized.
Feel free to post any question you may have for fellow members, or myself.

delemb2

Featured Advocate: Marie from Tasteful Truths 2/19

featured page

deltastMarie: I am an advocate because I know what it is like to feel like you do not have a voice. I know how hard it is to have words formed at the tip of your tongue but, never allowing them to fall out any further because of fear and shame. Fear of being judged and shame of being “ill”. I am an advocate for those who have not yet found their voice. I am an advocate for those who are still finding words to form their story. I am an advocate because having a mental illness is not something to be ashamed of. The world needs to hear everybody’s voice and story and I am hear for that.

Tasteful Truths The truth of having a mental illness from my point of view and others; worded as tastefully as possible.

Ever since I can remember I have battled an eating disorder; a disease that has the highest mortality rate of an other mental illness. Accompanying the eating disorder was always the bouts of depression, anxiety, and occasional OCD. I hid my eating disorder the best I could because there was so much shame in having it. It wasn’t until I was able to separate myself from my eating disorder (with the help of a wonderful treatment team and the book Life Without ED) that I understood an eating disorder was an illness; a serious life threatening illness.

I am now in my late twenties and I hear people bash not only eating disorders but other mental illnesses as well. This is simply a page with my thoughts and occasional quotes and inspiring photos to encourage people who are fighting a mental illness to keep going.  Website

deltast2

Featured Advocate: Scott from Obsessive Compulsive Disorder/Attack OCD 10/27

featured page

del91Scott: I joined advocacy because I felt I had a gift to offer the OCD Community – my experience in overcoming the disorder – and also my ability to research and find valuable information about OCD in a therapeutic way. I think one of the biggest keys to overcoming OCD is to be know the disorder – know your enemy. That means using all of the understandable research, science, and insight provided on World Wide Web today to gain a comprehensive picture of what OCD is – what we are dealing with – and the using the best tools developed to combat the disorder.

Obsessive Compulsive Disorder/Attack OCD
You are a young apprentice, slowly learning the ways of the “force”, but with the help of this page and the resources available here, you will become a Jedi Knight, mastering your OCD. Message me Scott Schneider and join our Facebook support group The Ways of the Force.
del92

Featured Advocate: J from Mental Health Mission 10/20

featured page

del74J: I am an advocate because I have always had a great interest in mental health, and, since being affected by mental illness personally, it is my mission to help break down the stigma attached to mental illness and to show nothing but love, care and acceptance to those who are struggling. I have a particular interest in stopping the stigma currently attached to personality disorders.

Mental Health Mission
This page aims to raise awareness, promote recovery and help to end the stigma of mental health illnesses and addictions.
Thank you for visiting the page. I am a long term sufferer of different mental health illnesses. I have personally suffered from depression, anxiety, OCD and BPD – (Obsessive Compulsive Disorder & Borderline Personality Disorder).My OCD started at 9 years old and is still with me today, my depression is also still with me but I am doing much better and the BPD reared its ugly head in a big way this year landing me in a psychiatric unit 6 times.I am now on the road to recovery and would like to spread positive recovery tips and pictures, talk about my experiences and also go into more depth about certain illnesses which are highly stigmatised.Hopefully spreading awareness on mental health issues will help to stop people from flippantly saying statements like “im so OCD about that” and “im so depressed today” which makes the illness seem insignificant when in fact it ruins lives.

Other admins also run this page who have varying issues with mental health and addictions.  Website

del75

Mental Illness Awareness Week October 5-11

 

Mental Health Advocates United posted definitions of some of the mental illnesses each day during Mental Illness Awareness Week (MIAW).  Posts from each day can be found below. A description of MIAW can be  found below the definitions.MIAW day 1 miaw day 2 MIAW day 3 miaw day 4 miaw day 5 miaw day 6 miaw day 7

 

NAMI: In 1990, the U.S. Congress established the first full week of October as Mental Illness Awareness Week (MIAW) in recognition of NAMI’s efforts to raise mental illness awareness. Since then, mental health advocates across the country have joined with others in their communities to sponsor activities, large or small, for public education about mental illness.

Why is MIAW important?

Each year millions of Americans face the reality of living with a mental health condition. During the first full week of October, NAMI and participants across the country are bringing awareness to mental illness. Each year we fight stigma, provide support, educate the public and advocate for equal care. Each year, the movement grows stronger.

We believe that these issues are important to address year round, but highlighting these issues during Mental Illness Awareness Week provides a time for people to come together and display the passion and strength of those working to improve the lives of the tens of millions of Americans affected by mental illness.

miaw

 

Featured Advocate: Anne from The OCD Project: A Book for Sufferers of OCD by Sufferers of OCD 8/26

featured page

del23Anne: I am an advocate because I have had moderate to extremely severe OCD on and off for 50 years. For the first 30 years, I also suffered from clinical depression, general anxiety and was a self harmer and eventually became agoraphobic and unable to work.

Meds never worked for me and greatly worsened my depression. I was lucky to have 12 years of respite aged 49 to 61 after four months of successful inpatient treatment and huge life style changes (leaving work and going to Uni). When I had my relapse aged 61, I could not get any more free treatment.

It makes me angry that so many sufferers cannot get access to treatment and are given meds that do not work. I opened this page in 2010 because I know OCD can be brought under at least some control with the right treatment, administered by a well trained therapist who understands OCD and lots of support from fellow sufferers and loved ones.

I am passionate about helping fellow sufferers as I don’t want to see anyone struggling alone again. I hope that my page will help sufferers to help themselves towards wellness. Anne Watkins (aged 66).

The OCD Project: A Book for Sufferers of OCD by Sufferers of OCD
The project, aka anneandherocdproject is aimed at ending stigma, improving treatment and after care and helping sufferers in need via our private pages. Website 
My name is Anne Watkins. I am 66. I have OCD but do not define myself by my condition. I currently have high control as a result of a lot of hard work and the friends I have made as a result of running this and my self help pages.I have three degrees including a PhD in Arab and Islamic studies (which I was awarded in 2009). I am passionate about helping those with OCD and their families. I am an optimist who has always believed that things will get better if I work at them. I hope you will enjoy this page and I welcome your comments and suggestions. Please remember that vulnerable people use and run this page so we do not tolerate bullying in any form. Any message or comment which we consider to be threatening or malicious will be removed from the page and reported to FB.
del19

 

Featured Advocate: Bec from 1, 2, 3 with ASD 8/15

featured page

delete45Bec: I am an advocate so I can  help other individuals and families who deal with Autism Spectrum Disorder and related conditions every day. I feel I am able to give a unique perspective on many issues because, while I am the parent of a 9 yr old son with severe autism and a 7 yr old daughter with Asperger’s Syndrome, I also have ASD myself.

I am a single parent and along with my Asperger’s I also have OCD, which I developed around age 10 & which still plagues me every day, clinical depression and (often) crippling anxiety. I am also quite a severe self-harmer and have been for as long as I can remember.

I often share my children’s triumphs and tears on our page but I also try and explain to people what it feels like for me, as an adult with ASD, to experience a meltdown, shutdown or sensory overload (among other things), in the hope it may assist families to better understand how it might feel for their child/sibling/family member who may not be able to explain for themselves how they are affected by these sorts of things. I also love it when people comment about their own or their child’s journey with ASD as it interests me greatly and makes me feel less alone.

Autism is my life’s work – I live it, live WITH it, study it at uni and work with children with ASD every day. I love it! I love to share our experiences to help others, raise awareness and help myself too! –

1, 2, 3 with ASD

I am an adult with Asperger Syndrome. I have a daughter with Asperger’s & a son with Autism. I invite you to journey through life’s up’s & down’s with us!

delete46

Featured Advocate: Shanna from Micah and Malachis Journey 7/2

featured page

micah3Shanna: I am an advocate because both of my twins have been diagnosed with autism, Tourette syndrome among a cluster of other diagnoses. I’m a single mother who has solely done it alone.  It has become my passion to educate and bring awareness to the basically invisible disorders. I am their mother, their provider, their security, their teacher and most importantly their voice.

The whole story:

When Micah t turned 2 I noticed he was a little louder, more repetitive, more jerky, and just over all more quirky than most. He would make barking noises and take 3 steps and jump over and over. In public he would get very excited (not always the good “I can handle this excited ” ) so I talked to his PCP. He referred him to a ped developmental doctor who took him under a series of test and evals.

Over the course of months the doctor  came to the conclusion that Micah was HFA (high functioning autistic).  He also was diagnose with Tourette’s, ADHD, OCD andsensory issues (which normally a cluster of disorders arise when having autism and/or tourette)

Micah is a big ball of laughter and joy and fun and love but throughout the process of evaluation with him a lot of what they asked or said referred to his twin brother Malachi so the developmental dr. strongly urged me to get the ball rolling on his evaluations. So, I went on another long journey of therapist and test and evals.

The more they tested him the more we all began to notice his problems was alot deeper than his twin brothers Micah…Micah was just more loud and out in your face….Malachi was diagnosed with aspergers, tics, adhd, and EXTREME anxiety, sensory, and ocd issues

The older they both get the more you learn what works and what doesn’t….. but I must say the older Malachi gets and the more he learns about the world and how unpredictable it can be the more he has clammed up and has withdrew…..Malachi gets easily obsessed about things and takes things extremely literal (ex- it was raining and i said “lord the house is gonna float away” and he went into panic mode and thought that was actually gonna happen…)

His fears consume him on a daily basis and its hard to deal with…. Micahs is more physical his lack of fine motor skills and tics and hyper activity is his challenges, but Malachis is much more emotional and deep and social . .They both are in therapy and see a psychiatrist……Malachi loves to draw and loves science….Micah loves anything electronic and they both love video games….their IQs are of that of a normal 10 yr old level but the way they process information is diff and can make it difficult at times…..they have an older brother Isaiah who is the best big brother and loves them deeply hes such a blessing to me and his little brothers….he like their mentor, super hero, big bro, best friend and protector all wrapped in one. he has had such a positive impact on them and we are blessed with such a wonderful little person to embark on our journey of trials, lessons, and laughter.

Micah & Malachi’s Journey

For my twins…spreading awareness of autism/tourette,ocd,adhd,anxiety,and sensory disorders….our journey is just beginning.

I created this page to inspire other families and to promote education and awareness to these commonly misconcepted disorders

micah2

 

 

Featured Advocate: Courtney from A Legion for Liam 6/23

featured page

lllCourtney: I am an autism advocate for my son Liam. I will include my latest post about his recent regression. I think this explains why I am an active advocate.  Society has failed us…. (blog article)

A Legion for Liam
Our life, uncensored, well except for the cuss words… I leave those out 😛 Sometimes I write. My blog 
lflMy son Liam is 6 and was diagnosed with autism in 2011. He was a late diagnosis. He is my only child, and I had nothing to compare his behavior to. He hit all of his developmental milestones on time, if not early, until about 15 months of age. He then back pedaled in a way. He wouldn’t let anyone hold him, touch him. Love was on his terms only. He became super picky and hard to feed. Vomiting at certain smells. He would scream uncontrollably at nite when we put him to bed, most nites, vomiting all over.We had no choice but to place him in our room. He would line up his foods, his toys, most everything! He was hyper, but he was from the time he was born. He didn’t sleep thru the nite until he was over 12 months old. The first 6 mths of life he was up every hour on the hour. There was no rhyme or reason to his behavior, and we had no clue. When we started to ? his actions we were told he was fine. At the age of 4 I had had enough, and I started switching doctors until we found one that would listen. In head start he had just barely passed his E.I testing. Hubs and I decided not to enroll him in early intervention as his issues (at that time) were not severe enough to pull him from class. We were late informed he had social issues at school. Finally at 5 we received his first diagnosis. That was Aspergers, ADHD, ODD, OCD, SPD. After he had a mini nervous breakdown we took him to NHS in Sayre for a second opinion. There we saw Dr. Dan Edmunds. We LOVE him!!!! He changed Liam’s diagnosis to Autism disorder, SPD, ADHD, OCD. This is where we are today.
I started this page to share, to educate, to advocate, and to meet other parents like us. I hope you learn. I hope I inspire, and I hope we become friends. WE ARE STRONGER TOGETHER ♥
My blog was “born” before this page, thus the reason for the different name. It is about our life with Autism. The good, the bad and the ugly. I don’t sugar coat. I am honest, to the point, and try to see the positive side in life. I also share my ideas and sensory crafts that Liam and I do together.
lfl2

Featured Advocate: Ken from Neurologically Gifted: Understanding Challenges in Neurological Disorder 5/6

featured page

Ken and Family:  We are a successful family profoundly affected by neurological disorder. Within our family of five we share and manage successfully with Tourette Syndrome, Attention Deficit Hyperactivity Disorder, Obsessive Compulsive Disorder, Oppositional Defiance Disorder, Social Anxiety, Post Traumatic Stress Syndrome, and Learning Disabilities. We have struggles and failures yet always move forward. We celebrate our strengths and we support each other with our weaknesses and throughout our personal growth. We want to share our experiences and knowledge and offer support to others living with, loving or teaching others who experience neurological differences. We have lots to share. We have found that learning as much as we can, educating others, advocating for our needs leads to the greatest successes.

Neurologically Gifted: Understanding Challenges in Neurological Disorder

ng 2Neurologically Gifted is your source for support, information, tools and strategies for living with neurological differences.  Website
Neurologically Gifted is your source for support, information, tools and strategies for living with neurological differences and neurochemical disorders including, but not limited to,
* Tourette Syndrome (TS)
* Attention Deficit Disorder (ADD) and Attention Deficit Hyperactivity Disorder (ADHD)
* Obsessive Compulsive Disorder (OCD)
* Oppositional Defiance Disorder (ODD)
* Intermittent Explosive Disorder (IED)
* Learning Disabilities (LD)
* Autism Spectrum Disorder (ASD)
Our information is geared towards parents, educators, affected individuals, and their friends. It will focus primarily on Tourette Syndrome, (TS), Attention Deficit Hyperactivity Disorder (ADHD), Obsessive Compulsive Disorder (OCD), Oppositional Defiance Disorder (ODD), however the challenges, strategies and tools will have applications to many other neurological difference disorders as well as those individuals who can be described as neurotypical.You will find support in the form of information, explanations, strategies and discussion tailored for the needs of our audience: parents will gain insight from two TS+ experienced parents, teachers/educators will learn from a seasoned lead educator, individuals who have TS+ will be able to reflect on the experiences and musings of 2 adults who deal with the daily challenges these disorders bring, and friends and family members will benefit from learning and gaining an understanding of why we Touretters are driven to do what we do.ng